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July 21, 2020; 95 (3) Article

Implementation of a data accuracy plan to improve data extraction yield in the Axon Registry®

M. Cristina C. Victorio, Karen Lundgren, Melissa Johnston-Gross, Amy Bennett, Brandon Magliocco, Aditya Deshpande, Lyell K. Jones
First published June 26, 2020, DOI: https://doi.org/10.1212/WNL.0000000000009884
M. Cristina C. Victorio
From the NeuroDevelopmental Science Center (M.C.C.V.), Akron Children's Hospital, OH; American Academy of Neurology (K.L., M.J.-G., A.B., B.M.), Minneapolis, MN; FIGmd Inc (A.D.), Rockford, IL; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
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Karen Lundgren
From the NeuroDevelopmental Science Center (M.C.C.V.), Akron Children's Hospital, OH; American Academy of Neurology (K.L., M.J.-G., A.B., B.M.), Minneapolis, MN; FIGmd Inc (A.D.), Rockford, IL; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
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Melissa Johnston-Gross
From the NeuroDevelopmental Science Center (M.C.C.V.), Akron Children's Hospital, OH; American Academy of Neurology (K.L., M.J.-G., A.B., B.M.), Minneapolis, MN; FIGmd Inc (A.D.), Rockford, IL; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
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Amy Bennett
From the NeuroDevelopmental Science Center (M.C.C.V.), Akron Children's Hospital, OH; American Academy of Neurology (K.L., M.J.-G., A.B., B.M.), Minneapolis, MN; FIGmd Inc (A.D.), Rockford, IL; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
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Brandon Magliocco
From the NeuroDevelopmental Science Center (M.C.C.V.), Akron Children's Hospital, OH; American Academy of Neurology (K.L., M.J.-G., A.B., B.M.), Minneapolis, MN; FIGmd Inc (A.D.), Rockford, IL; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
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Aditya Deshpande
From the NeuroDevelopmental Science Center (M.C.C.V.), Akron Children's Hospital, OH; American Academy of Neurology (K.L., M.J.-G., A.B., B.M.), Minneapolis, MN; FIGmd Inc (A.D.), Rockford, IL; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
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Lyell K. Jones Jr
From the NeuroDevelopmental Science Center (M.C.C.V.), Akron Children's Hospital, OH; American Academy of Neurology (K.L., M.J.-G., A.B., B.M.), Minneapolis, MN; FIGmd Inc (A.D.), Rockford, IL; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
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Implementation of a data accuracy plan to improve data extraction yield in the Axon Registry®
M. Cristina C. Victorio, Karen Lundgren, Melissa Johnston-Gross, Amy Bennett, Brandon Magliocco, Aditya Deshpande, Lyell K. Jones
Neurology Jul 2020, 95 (3) e310-e319; DOI: 10.1212/WNL.0000000000009884

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Abstract

Objective To conduct a data quality improvement project to improve the quality measure data mapping and to measure key phrase logic in the Axon Registry.®

Methods Prior validation analysis of the Axon Registry identified 2 main areas for remediation: methodology for mapping data from electronic health record (EHR) into the registry clinical data record (CDR) and key phrase logic for each measure. Practice groups participating in Axon Registry and 6 Axon Registry quality measures were selected for intervention. Mapping of measure elements and measure performances for each of the selected measures and practices were reviewed before intervention. The Data Accuracy Plan (DAP) was performed, and documentation data and visit data counts and data yield after intervention were calculated and analyzed.

Results Documentation data and visit data counts and data yield increased for all 6 quality measures and all practices in the DAP. Increase in documentation data count ranged from 815 to 15,782 occurrences, while visit data count increase ranged from 519 to 16,383 visits. Average data yield range was 7.22% to 33.46% before intervention and increased to a range from 15.34% to 74.40% after intervention.

Conclusion There was substantial improvement in the accuracy of data extraction for quality measure elements after intervention to improve methodology for mapping EHR data into CDR and key phrase logic. Implementation of changes and continued review of data mapping and data dictionary are important to ensure accurate measure performance and to improve reliability and validity of Axon Registry data.

Glossary

AAN=
American Academy of Neurology;
BP=
blood pressure;
CDR=
clinical data record;
DAP=
Data Accuracy Plan;
EHR=
electronic health record;
ICD-9=
International Classification of Diseases, 9th revision;
ICD-10=
International Classification of Diseases, 10th revision;
MIPS=
Merit-Based Incentive Payment System;
PD=
Parkinson disease;
QI=
quality improvement

Footnotes

  • Go to Neurology.org/N for full disclosures. Funding information and disclosures deemed relevant by the authors, if any, are provided at the end of the article.

  • Received June 30, 2019.
  • Accepted in final form January 5, 2020.
  • © 2020 American Academy of Neurology
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