用轴突登记处测量动态神经健康差异(P18-13.008)

摘要目的:研究美国神经病学学会(AAN)轴突登记处门诊神经病学质量测量中的潜在种族和民族(R/E)差异。首页

背景:神经系统发病率和死亡率的R/E差异已被明确记录。尽管有这些发现，还没有广泛的美国全国范围内的差异门诊神经护理检查。

设计/方法:这是一项回顾性非随机队列研究，研究对象为AAN轴突登记处的患者。如果患者在2019年1月1日至2019年12月31日的研究期间对多发性硬化症、癫痫、帕金森病或头痛的选定质量指标之一做出了贡献，则将其纳入研究。对患者人口统计学进行描述性分析，然后按种族和民族进行分层。

结果:这些分析共纳入635,819例患者。对种族进行单独分析(64%为白人;8%是黑人;亚洲的1%;27%未知)和种族(52%不是西班牙裔;5%的西班牙裔;未知的43%)。平均年龄为18 - 55岁，其中39%为女性;男性27%;34%未知。 Quality measures were chosen based on completeness of R/E data and were either process or outcomes focused. The number of measures varied by disease (e.g. multiple sclerosis 1; epilepsy 1; Parkinson’s Disease 5; headache 4). Provider performance on quality measures ranged from 0 – 84%, with statistically significant differences by R/E after controlling for multiple testing.

结论:大量缺失或未知的R/E数据以及质量测量的低总体绩效率使得这些小差异的相关性难以确定。然而，这项分析确实证明了使用轴突登记处评估门诊护理中神经系统差异的可行性。需要就如何收集R/E数据的重要性进行更多的教育和培训。

披露:本森医生没什么可透露的。贝尼什医生没什么可说的。作为NeuroOne Technology Corporation的顾问，他获得了500- 4,999美元的个人报酬。作为辉瑞公司的顾问，他获得了500- 4,999美元的个人报酬。他曾因担任Mitchell Law Group的专家证人而获得500- 4,999美元的个人报酬。Kissela博士的研究所得到了NIH/NINDS和NCATS的研究支持。Rosendale博士作为《神经病学》的编辑、副编辑或编辑顾问委员会成员，获得了500- 4,999美元的个人报酬。首页罗森代尔博士的研究机构得到了加州大学旧金山分校医学教育学院的研究支持。Rosendale博士的研究所得到了美国神经病学学会的研究支持。首页马鲁兰达-隆多尼奥医生没什么可透露的。 Dr. Hope has nothing to disclose. Dr. Pham has nothing to disclose. Dr. Roe has received personal compensation for serving as an employee of Verana Health. Dr. Roe has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Novo Nordisk. Dr. Roe has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Regeneron. Dr. Roe has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche-Genetech. Dr. Roe has received stock or an ownership interest from Verana Health. Dr. Torres has received personal compensation for serving as an employee of Verana Health. Amanda Lien has received personal compensation for serving as an employee of Verana Health. Amanda Lien has received stock or an ownership interest from Verana Health. Dr. Kauwe has received personal compensation in the range of $500-$4,999 for serving as a Consultant for IONIQ Sciences. Aristotle Mante has nothing to disclose. Ms. Lundgren has nothing to disclose. Ms. Schierman has nothing to disclose. Dr. Jones has received publishing royalties from a publication relating to health care. Dr. Jones has a non-compensated relationship as a member of the Board of Directors with Mayo Clinic ACO that is relevant to AAN interests or activities.