% 0期刊文章%一个朱迪Illes % Viorica Hrincu %帕特里克麦当劳%玛丽·康诺利%标志着乔治·易卜拉欣哈里森% %一个温斯顿Chiong Robert Naftel % % Farhad Udwadia %一个一致的Ribary % T因素指导选择小说Neurotechnological干预儿童癫痫耐药:医生和照顾者的角度(2318)% D J神经病学2021% % P V 96% 2318% N % X 15补充目的:解决知识缺口和伦理性考量周边采用小说Neurotechnological小儿癫痫耐药(DRE)。首页背景:微创和neuromodulatory干预可以有效替代传统的癫痫手术治疗小儿DRE。采用这些新的治疗方法必须伴随儿童照顾者的优先级和值与DRE。通过医生和家庭确定伦理参数,我们寻求促进决策在这个不断发展的技术格局。设计/方法:我们招募了儿科epileptologists和神经外科医生在加拿大和美国参与的四个焦点小组在国家会议(n = 33)。我们招募了家长和儿童的主要照顾者的衣服三个焦点小组,或个别访谈,通过诊所(n = 22)。讨论分析了使用定性内容分析。结果:主要主题分支——医生:1)临床决策和2)伦理方面的考虑。根据临床决策,科学证据和病人subthemes参选是重要。持续的癫痫发作不干预是神经发育和安全风险。伦理性考量下,资源分配和外部金融压力重大subthemes,对技术采用和访问产生了深远的影响。主要主题分支——家庭:1)功能的干预,2)决定司机,和3)信息。 Under features of the intervention, parents assessed the overall risk-benefit ratio of the neurotechnology, emphasizing quality of life. Parents acknowledged the risks of doing nothing, but expressed an aversion to invasive procedures. Under decision drivers, trust in the physician was a significant subtheme. Parents were determined to overcome treatment costs; specific access concerns varied by region. Under information, personal research–especially online–dominated the subtheme.Conclusions: Physicians and caregivers identify shared and divergent ethical and contextual factors affecting decision-making for novel neurotechnological interventions for pediatric DRE. Healthcare delivery can be maximized through the alignment of stakeholder treatment perspectives, values, and priorities.Disclosure: The institution of Dr. Illes has received research support from NIH, CIHR, Technical Safety BC, WorkSafeBC, North Growth Foundation, Dana Foundation. Dr. Illes has received intellectual property interests from a publication relating to health care. Dr. Illes has a non-compensated relationship as a Principal Investigator, Canada Research Chair with NIH and CIHR that is relevant to AAN interests or activities. Ms. Hrincu has received personal compensation for serving as an employee of LoginRadius. The institution of Patrick McDonald has received research support from National Institutes of Health. Dr. Connolly has nothing to disclose. The institution of Mark Harrison has received research support from Canadian Institutes of Health Research. The institution of Mark Harrison has received research support from Michael Smith Foundation for Health Research. The institution of Mark Harrison has received research support from National Institutes of Health. The institution of Mark Harrison has received research support from Candian Rheumatology Association . George Ibrahim has nothing to disclose. Robert Naftel has nothing to disclose. The institution of Dr. Chiong has received research support from the National Institutes of Health. Dr. Chiong has received personal compensation in the range of $500-$4,999 for serving as a member, NeuroEthics Working Group with National Institutes of Health. Farhad Udwadia has nothing to disclose. Urs Ribary has nothing to disclose. %U