TY - T1的多发性硬化症监视注册表:一种新颖的互动VA卫生保健系统中的数据库(P2.127) JF -神经学乔-神经学六世- 86 - 16补充SP - P2.127 AU -米切尔沃林AU -威廉Culpepper盟——露丝Whitham AU -海蒂Maloni盟A首页kimyo罗素盟-朱迪Haselkorn AU -朱迪McConnachie AU -乔纳森Duckart AU -约翰Kurtzke Y1 - 2016/04/05 UR - //www.ez-admanager.com/content/86/16_Supplement/P2.127.abstract N2 -目的:展示一个交互式的基础设施和公用事业的健康系统数据库对于多发性硬化症(MS)我们现在美国监视注册表(MSSR)女士VHA医疗保健系统。背景:疾病特定数据库可以帮助神经条件的管理但很少有完全集成到电子医疗记录和有关卫生系统数据。创建一个一致的信息技术(IT)体系结构和持续的支持在疾病特定注册中心一直是一个挑战。方法:构建MSSR发起一个迭代过程与IT团队和专家女士。一个普通的“聚合注册中心”平台共享的其他VA疾病特定注册中心(如创伤性脑损伤、癌症)是用于开发的IT基础设施。例女士女士进入一个评估工具通过一个基于web的注意在每个区域诊所女士在大西洋中部和西北太平洋地区网络。其他大型VHA数据库与MSSR进行了综述。患者人口统计学和临床特点与更广泛的比较和对比VHA人口和其他美国注册数量。结果:约25000 MS患者积极利用VA卫生保健系统在2013 - 2015之间,我们招收了930名MSSR从两个地理区域。病人的平均年龄为56.0岁,M: F比值为2.7。 Among those with definite MS, the mean European Database for MS score was 5.1 and 47[percnt] were currently using a DMT. A summary electronic dashboard was developed for health care providers to easily access demographic and clinical data for individuals and groups of patients. Data on co-morbid conditions, pharmacy and prosthetics utilization, outpatient clinic and inpatient admission were documented for each patient. Conclusions: The MSSR is a unique electronic database that has enhanced clinical management of MS and serves as a national source for clinical outcomes.Disclosure: Dr. Wallin has nothing to disclose. Dr. Culpepper has nothing to disclose. Dr. Whitham has received personal compensation for activities with Chugai Pharmaceutical as a data safety monitoring board member. Dr. Maloni has nothing to disclose. Dr. Russell has nothing to disclose. Dr. Haselkorn has nothing to disclose. Dr. McConnachie has nothing to disclose. Dr. Duckart has nothing to disclose. Dr. Kurtzke has nothing to disclose.Sunday, April 17 2016, 8:30 am-5:30 pm ER -