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October 04, 2022; 99 (14) Editorial

Helping Families With Fateful Decisions

Nirupama Yechoor, Jonathan Rosand
First published July 19, 2022, DOI: https://doi.org/10.1212/WNL.0000000000201145
Nirupama Yechoor
From the Henry and Allison McCance Center for Brain Health (N.Y., J.R.), Massachusetts General Hospital, Boston; Division of Neurocritical Care (N.Y., J.R.), Massachusetts General Hospital, Boston; Department of Neurology (N.Y., J.R.), Harvard Medical School, Boston; and Program in Medical and Population Genetics (J.R.), the Broad Institute, Cambridge, MA.
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Jonathan Rosand
From the Henry and Allison McCance Center for Brain Health (N.Y., J.R.), Massachusetts General Hospital, Boston; Division of Neurocritical Care (N.Y., J.R.), Massachusetts General Hospital, Boston; Department of Neurology (N.Y., J.R.), Harvard Medical School, Boston; and Program in Medical and Population Genetics (J.R.), the Broad Institute, Cambridge, MA.
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Helping Families With Fateful Decisions
Nirupama Yechoor, Jonathan Rosand
Neurology Oct 2022, 99 (14) 593-594; DOI: 10.1212/WNL.0000000000201145

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Few decisions are more fateful than those we must make on behalf of our loved ones with devastating brain injuries. What would they consider a fate worse than death? In addition, if we think we can intuit an answer to that weighty question with some confidence, what odds might they be willing to take? Would they continue life-sustaining care if there is a 10% chance of achieving recovery? If the most likely outcome is a fate worse than death, should we choose to pursue every medical intervention to ensure survival? These are agonizing decisions. When made with the support of a trustworthy medical team, we can at least emerge with the confidence that we did the best we possibly could for our loved one, guided by best intentions, medical expertise, collaboration, and trust.

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  • Go to Neurology.org/N for full disclosures. Funding information and disclosures deemed relevant by the authors, if any, are provided at the end of the article.

  • ↵* These authors contributed equally to this work.

  • See page 599

  • Received June 7, 2022.
  • Accepted in final form July 6, 2022.
  • © 2022 American Academy of Neurology
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