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August 05, 2014; 83 (6) Views & Reviews

Palliative care and neurology

Time for a paradigm shift

Isabel Boersma, Janis Miyasaki, Jean Kutner, Benzi Kluger
First published July 2, 2014, DOI: https://doi.org/10.1212/WNL.0000000000000674
Isabel Boersma
From the Departments of Neurology and Psychiatry (I.B., B.K.) and Internal Medicine (J.K.), University of Colorado Anschutz Medical Campus, Aurora; and Department of Neurology (J.M.), University of Alberta, Edmonton, Canada.
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Janis Miyasaki
From the Departments of Neurology and Psychiatry (I.B., B.K.) and Internal Medicine (J.K.), University of Colorado Anschutz Medical Campus, Aurora; and Department of Neurology (J.M.), University of Alberta, Edmonton, Canada.
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Jean Kutner
From the Departments of Neurology and Psychiatry (I.B., B.K.) and Internal Medicine (J.K.), University of Colorado Anschutz Medical Campus, Aurora; and Department of Neurology (J.M.), University of Alberta, Edmonton, Canada.
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Benzi Kluger
From the Departments of Neurology and Psychiatry (I.B., B.K.) and Internal Medicine (J.K.), University of Colorado Anschutz Medical Campus, Aurora; and Department of Neurology (J.M.), University of Alberta, Edmonton, Canada.
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Palliative care and neurology
Time for a paradigm shift
Isabel Boersma, Janis Miyasaki, Jean Kutner, Benzi Kluger
Neurology Aug 2014, 83 (6) 561-567; DOI: 10.1212/WNL.0000000000000674

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Abstract

Palliative care is an approach to the care of patients and families facing progressive and chronic illnesses that focuses on the relief of suffering due to physical symptoms, psychosocial issues, and spiritual distress. As neurologists care for patients with chronic, progressive, life-limiting, and disabling conditions, it is important that they understand and learn to apply the principles of palliative medicine. In this article, we aim to provide a practical starting point in palliative medicine for neurologists by answering the following questions: (1) What is palliative care and what is hospice care? (2) What are the palliative care needs of neurology patients? (3) Do neurology patients have unique palliative care needs? and (4) How can palliative care be integrated into neurology practice? We cover several fundamental palliative care skills relevant to neurologists, including communication of bad news, symptom assessment and management, advance care planning, caregiver assessment, and appropriate referral to hospice and other palliative care services. We conclude by suggesting areas for future educational efforts and research.

GLOSSARY

MS=
multiple sclerosis;
PD=
Parkinson disease

Footnotes

  • Go to Neurology.org for full disclosures. Funding information and disclosures deemed relevant by the authors, if any, are provided at the end of the article.

  • Supplemental data at Neurology.org

  • Received January 31, 2014.
  • Accepted in final form April 27, 2014.
  • © 2014 American Academy of Neurology
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Letters: Rapid online correspondence

  • Response to Dr. Gillum
    • Benzi M. Kluger, Associate Professor of Neurology, University of Coloradobenzi.kluger@ucdenver.edu
    • Janis Miyasaki, Edmonton, AB
    Submitted September 04, 2014
  • Palliative crisis
    • Leslie A Gillum, Neurologist, Neurology Medical Group of Diablo ValleyLesliegillum@hotmail.com
    Submitted August 28, 2014
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  • Article
    • Abstract
    • GLOSSARY
    • WHAT IS PALLIATIVE CARE AND WHAT IS HOSPICE CARE?
    • WHAT ARE THE PALLIATIVE CARE NEEDS OF NEUROLOGY PATIENTS?
    • DO NEUROLOGY PATIENTS HAVE UNIQUE PALLIATIVE CARE NEEDS?
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