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July 25, 2023Contemporary Issues in Practice, Education, & Research

Access to Pediatric Neurology training and services worldwide: A survey by the International Child Neurology Association

View ORCID ProfileJo M Wilmshurst, View ORCID ProfileCoriene Catsman-Berrevoets, Donald L. Gilbert, View ORCID ProfileLakshmi Nagarajan, View ORCID ProfilePauline Samia, View ORCID ProfileEsra Serdaroglu, View ORCID ProfileChahnez Triki, Jorge Vidaurre, View ORCID ProfileBiju Hameed, for Pediatric Neurology Training study group
First published July 25, 2023, DOI: https://doi.org/10.1212/WNL.0000000000207633
Jo M Wilmshurst
1Department of Paediatric Neurology, Red Cross War Memorial Children’s Hospital, Neuroscience Institute, University of Cape Town, South Africa
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  • ORCID record for Jo M Wilmshurst
  • For correspondence: jo.wilmshurst@uct.ac.za
Coriene Catsman-Berrevoets
2Department of Paediatric Neurology, ErasmusMC / Sophia Childrens Hospital, Rotterdam, the Netherlands
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  • ORCID record for Coriene Catsman-Berrevoets
Donald L. Gilbert
3Division of Neurology, Cincinnati Children’s Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati OH USA
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Lakshmi Nagarajan
4Dept of Neurology, Perth Children’s Hospital, 4b Faculty of Health and Medical Sciences, UWA, 4c Telethon Kids Institute, Perth, Australia
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Pauline Samia
5Department of Paediatrics and Child Health, Medical College, Aga Khan University, Nairobi Kenya
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Esra Serdaroglu
6Department of Child Neurology, Gazi University School of Medicine, Ankara, Turkey
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Chahnez Triki
7Child Neurology Department, Hedi Chaker Hospital, University of Sfax, Tunisia
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  • ORCID record for Chahnez Triki
Jorge Vidaurre
8Pediatric Clinical Neurophysiology Fellowship, Nationwide Children’s Hospital, The Ohio State University, USA
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Biju Hameed
9Department of Paediatric Neurology and Neurodisability, Great Ormond Street Hospital for Children, London.
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Citation
Access to Pediatric Neurology training and services worldwide: A survey by the International Child Neurology Association
Jo M Wilmshurst, Coriene Catsman-Berrevoets, Donald L. Gilbert, Lakshmi Nagarajan, Pauline Samia, Esra Serdaroglu, Chahnez Triki, Jorge Vidaurre, Biju Hameed, for Pediatric Neurology Training study group
Neurology Jul 2023, 10.1212/WNL.0000000000207633; DOI: 10.1212/WNL.0000000000207633

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Abstract

Pediatric neurology is the medical subspecialty responsible for diagnosing and managing diseases and disorders of the nervous system in childhood and adolescence. In many, but not all, regions of the world the discipline of pediatric neurology is recognized as a specialty or subspecialty of either Neurology or Pediatrics. Significant knowledge and competencies in this area are necessary to be effective in clinical practice. The need for this is driven by the high burden of disease from neurological conditions in children and the impact on their families.

As the first part of a multi-staged project under the auspices of the International Child Neurology Association, in collaboration with key stakeholders, a survey was undertaken to establish which countries have practicing child neurologists. For those countries that have child neurologists, the survey established the number of practitioners, and which countries have access to in-country child neurology training.

Responses were obtained from 177 countries. Worldwide there is a median of 0.07 and mean of 0.39 child neurologists per 100 000 population. The greatest deficits in child neurology specialists and access to training were evident in countries which fell under the world bank rating of low income country status (range of 0 to 0.008 child neurologists per 100 000 population). Seventy-three percent of low income countries lack access to child neurologists: the majority are in the African and South-East Asia Regions. For the population of 1.37 billion in the continent of Africa there were 324 child neurologists, equating to median 0.01 per 100 000 population in comparison to a median of 0.59 child neurologists per 100 000 across high income countries. Ninety-four countries had capacity to support in-country pediatric neurology training.

Worldwide there are inadequate numbers of child neurologists and great need for increased training capacity.

  • Received December 18, 2022.
  • Accepted in final form May 30, 2023.
  • © 2023 American Academy of Neurology

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